Rare Facts: 80% of rare diseases are genetic, and therefore are present throughout
the child’s entire life, even if symptoms do not immediately appear.

About Us

Children with rare illnesses have complex needs to accomplish basic daily tasks.

Rare Kids Network is a 501(c)(3) corporation partnering with health care providers to bridge the gap between inpatient hospitalizations and outpatient support services to facilitate a better quality of life.   We help children and  families overcome the social, economic and physical challenges of living with a rare illness.   And, the added bonus is that we do not charge a fee for our assistance.

Newly diagnosed, undiagnosed or many years after diagnosis — you can rely on Rare Kids Network!