Advisory Committee

Each member of our advisory committee brings unique knowledge and skills to strengthening our mission. We are extremely thankful for their contributions and their commitment to children with rare illnesses.

  • Melissa Alexander – Teacher, Prince William County Public Schools
  • Tracy Allen, Vice President – ECS Limited
  • Michael Graff, Jr., Partner – McGuire Woods
  • Kate Hardy, Partner – McGuire Woods
  • Natalie Hauser, MD, Chief, Division of Medical Genomics – Inova Translational Medicine Institute
  • Callie Jenevein, MS, CGC – Inova Translational Medicine Institute
  • Pete Jobse, Managing Director – Inova Strategic Investments/Inova Personalized Health Accelerator
  • Nathan Kottkamp, Senior Counsel – McGuire Woods
  • Magalie Leduc, Ph.D, FACMG, Associate Laboratory Director – Veritas Genetics
  • Rick Leichtweis, Ph;D, Senior Director – Inova Kellar Center
  • Robyn Mehlenbeck, Ph.D, ABPP,  Director — George Mason University Center for Psychological Services
  • Leon Moores, MD – Chief Executive Officer, Pediatric Specialists of Virginia
  • Debra Regier, MD, PhD, Director of Education – Rare Disease Institute, Children’s National Health System
  • Marshall Summar, MD, Division Chief, Genetics & Metabolism; Director, Rare Disease Institute, Childrens National Health System
  • Emily Voorheis, Associate – McGuire Woods