Rare Disease Day is February 28, 2018
Raise awareness and show someone rare that you care! https://www.youtube.com/watch?v=MRC9KNbxzD8&feature=youtu.be
Local Girl with Rare Brain Tumor Chosen as St. Baldrick’s Ambassador
WASHINGTON (ABC7) — At just eight years old, Julia Alexander from Manassas was diagnosed with a rare form of brain cancer. Three years, three major surgeries, eight rounds of chemo, and two months of radiation later – Julia is using her diagnosis to help others as one of five ambassadors of the St. Baldrick’s Foundation. Julia joined [...]
Batten Disease Threatening Local Boy
http://www.wusa9.com/news/health/calebs-chance-va-mom-seeks-help-for-ill-son/501772875 Caleb needs a life saving clinical trial. This young boy from King George, Virginia will be connected to potential resources who may be able to help. Another confirmation our mission is critical!
Challenges to Obtain Life Saving Medications
Young boy with Hereditary Angioedema faces challenges to obtain life saving medications. RKN has connected the mother with the hereditary angioedema association to quickly provide a solution. Parents fight for their son