Rare Kids Network & Children’s National: Helping Kids w/Rare Disease (NBC 4)
Watch the interview from News4 Your Sunday here: https://www.nbcwashington.com/contact-us/community/News4-Your-Sunday-Helping-Kids-With-Rare-Diseases_Washington-DC-559760142.html?fbclid=IwAR1ihL5rkLym11yh0W3XSXNJxgpF_l3prHyusJR0rz3ZRP_L7j4FD5y0yJI
CDM Rare Selects RKN For Pro Bono Marketing/Branding services.
We are excited to announce Rare Kids Network has been selected by CDM Rare, a division of Omnicom Health Group in New York City for pro bono marketing and branding services. CDM is very excited about our mission and they [...]
Launching our Rare Kids on the Town T-Shirt Campaign
We are launching our Rare Kids on the Town T-Shirt Campaign! We hope you will join us by purchasing a shirt and sending us a photo of you wearing it in the community. (patricia@rarekidsnetwork) Your photo will be posted on [...]
Kids with rare rapid-aging disease get hope from study drug
CHICAGO — Children with a rare, incurable disease that causes rapid aging and early death may live longer if treated with an experimental drug first developed for cancer patients, a study suggests. The small, preliminary study isn't proof the drug works and it found [...]
Proposed RARE Act Seeks to Address Common Challenges Rare Disease Patients Face
Two Congressmen have introduced the Rare Disease Advancement, Research, and Education (RARE) Act, a bipartisan bill that seeks to address common challenges faced by rare disease patients and their families. Rep. André Carson, D-Indiana, and Rep. Ryan Costello (R-PA) introduced [...]
Rare Disease Day is February 28, 2018
Raise awareness and show someone rare that you care! https://www.youtube.com/watch?v=MRC9KNbxzD8&feature=youtu.be