News2019-04-08T18:53:50+00:00

Kids with rare rapid-aging disease get hope from study drug

CHICAGO — Children with a rare, incurable disease that causes rapid aging and early death may live longer if treated with an experimental drug first developed for cancer patients, a study suggests. The small, preliminary study isn't proof the drug works and it found [...]

Proposed RARE Act Seeks to Address Common Challenges Rare Disease Patients Face

Two Congressmen have introduced the Rare Disease Advancement, Research, and Education (RARE) Act, a bipartisan bill that seeks to address common challenges faced by rare disease patients and their families. Rep. André Carson, D-Indiana, and Rep. Ryan Costello (R-PA) introduced [...]

Local Girl with Rare Brain Tumor Chosen as St. Baldrick’s Ambassador

WASHINGTON (ABC7) — At just eight years old, Julia Alexander from Manassas was diagnosed with a rare form of brain cancer. Three years, three major surgeries, eight rounds of chemo, and two months of radiation later – Julia is using her [...]