Children with rare illnesses require extra support to attain the best quality of life. Because each illness is complex, we will take the time to understand the challenges and then we will help you secure appropriate resources. We can also help you obtain the information needed to make the best decisions for your child and your family. We will make every effort to reduce your burden and you can be assured we do not charge a fee for doing so.
Our core service areas include:
Because family members overlook their needs during their child’s medical crisis, we support parents, siblings, and grandparents too! The health & happiness of the entire family unit directly impacts the child’s ability to thrive.