Because each illness is complex, we will take the time to understand the challenges and then we will help you secure the appropriate resources. We can also help you obtain the information needed to make the best decisions for your child and your family.
Once referred to Rare Kids Network, we will conduct an intake session and then create a diagnosis-based assistance plan. Next, we help secure resources to address the challenges impacting quality of life. Because the entire family is an integral part of the journey, we coordinate social support services to build resilience and to foster hope. Then, we focus on empowering families with knowledge and providing patient advocacy services to secure much needed resources. You will be relieved to have a designated nurse navigator to assist you and your family throughout your child’s continuum of care.
Rare illnesses are life changing. Each child’s future is uncertain. We understand your journey and we want to reduce your isolation, confusion & fear.
Our core service areas include:
Because family members overlook their needs during their child’s medical crisis, we support parents, siblings, and grandparents too! The health & happiness of the entire family directly impacts the child’s ability to thrive.