Rare Facts: Approximately 50% of rare diseases do not have a disease
specific foundation supporting or researching their rare disease

Volunteer Opportunities

What’s YOUR passion? We need your talents to help children with rare illnesses attain a better quality of life. We have ongoing volunteer opportunities as well as event or service specific opportunities.

Please provide your contact information so that we may connect with you!

Thank you for your willingness to serve! *(Please note some events or services may require volunteers to be 18 years old without a parent)